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哈哈

song

GBS

脱髓鞘多发性神经炎

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哈哈3岁女儿罹患罕见病 老婆心疼揭病程

(首尔讯)韩国艺人与歌手于2012年结婚,至今育有2子1女,是演艺圈内的模范夫妻。不料,27日在IG表示幼女Song得了罕见疾病,过去一段时间内她放下手边所有工作,全心照顾女儿,“跟家人们度过很辛苦的时间。”

在IG晒出女儿的照片,并写下:“Song生了一场病,所以这段时间没有更新IG、YouTube,也放下了专辑录音工作,好长一段时间做不了任何事。”她透露一直以来都很健康的女儿,突如其来的病症,不只孩子痛苦,全家人也度过了一段辛苦的时间,并提到女儿的病名是“格林巴利症候群”(又称)。

哈哈与星育有3个孩子,经常在社交网络晒甜蜜家庭日常。
哈哈与星育有3个孩子,经常在社交网络晒甜蜜家庭日常。

心疼道:“我宁愿生病的是我,每个晚上都在祈祷我能代替孩子承受痛苦,情绪崩溃了好几次,不过在跟Song一起住院的这段时间,看到了很多比Song更辛苦、痛苦地躺在病床上的孩子。”在那之后便转变成为这些受病魔折腾的孩子祈祷,希望上天能帮助他们。

所幸Song现在已经恢复健康,在照片中可以看到她对著镜头开心大笑,气色也非常好,欣慰表示:“Song恢复的速度几乎可以说是奇迹。”出院回家休养后,每一天也都持续在进步,先前回诊时,也被医师告知“好像不需要继续药物治疗与复健了”,这才让她放下心中大石。

阅读更多
Song前阵子受格林巴利症候群所苦。
Song前阵子受格林巴利症候群所苦。

格林巴利症候群简称为,是一种病毒或细菌感染后,所导致的急性多发性神经炎。病患在感染后,引发身体本身免疫系统反应而产生抗体,抗体“无差别”攻击人体的周边神经髓鞘细胞,造成周边神经系统瘫痪,导致感觉、运动或自律神经失调。常见症状有四肢发麻、手脚无力、走路频繁跌倒、吞咽困难、呼吸困难等,病程恶化非常快速,严重时需气切,少数人会因缺氧死亡。


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哈哈

song

GBS

脱髓鞘多发性神经炎

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